- 장애인인식개선신문
- 장애인인식개선신문은 ‟장애인 인권, 권리, 차별, 복지, 교육, 고용, 문화,예술, 스포츠, 여행 등 장애인인식개선교육 과 관련된 다양한 정보를 제공합니다.‟지체장애,뇌병변장애,시각,청각,언어,지적,정신,자폐성,신장,심장,호흡기,간,안면,장루요루,뇌전증.회장:안중원/ 발행인:최봉혁
(Seoul = Disability Awareness Newspaper) Choi Bong-hyuk columnist (AI · ESG · DX convergence expert, workplace disability awareness training expert) = Kang Seon-a's mother, Park Jeong-sook, 18 months old... Can you be healed by repaying 3 times the time of the pain you experienced since birth?~
Dad, Mom, and my eldest daughter, and Seon-a was born, and Mom was happy raising a newborn.
In the time that passed like that, Seon-a, compared to her older sister who was born 17 months earlier or other children of the same age, Seon-a often suffered from minor illnesses.
In daily life, her language development was slow, and her cognitive abilities were also delayed, so the mother who was raising her was busier, more tired, and exhausted than any other mother, and she fell asleep many days.
But still, she was happy. My clone, our youngest daughter, gave us a 'special meaning' and we embraced it like that.
Once her crying started, it was useless to soothe her, and she would cry for over an hour, and then her crying would stop when she was exhausted from crying. Mom didn't know the reason, and she repeated countless times, worrying about what to do with the crying child.
Every time that happened, I wondered if there was something wrong with the child... I worried and wanted to think that Seon-a was just a little behind in her normal development.
One day, while I was worried, my older sister suggested that I take her to the hospital for a checkup.
And at the doctor's opinion that there was a high possibility of autism, I searched for a doctor who was famous for autism since Seon-a was 18 months old and diligently visited him for nearly 2 years.
There were only two questions I asked when I met the doctor. First, hoping that my child wasn't autistic, I asked if she was autistic or not.
Second, if she was autistic, could she be completely cured if I raised her well?~ Because she was still young, even the doctors didn't make a rash diagnosis.
They simply said that her development was significantly delayed compared to other children of the same age, so her mother should play with her diligently at home, and if possible, send her to a playroom or kindergarten around the age of 3 or 4.
At that time, I thought Seon-a's developmental delay was a mental illness caused entirely by my fault, so I felt a lot of regret and guilt towards her.
So I hugged Seon-a tightly and said as if making a promise, "Can you be healed if I repay 3 times the time of the pain you experienced from birth until 18 months?~"
But the situation was such that I couldn't devote all my time to Seon-a.
Seon-a's older sister also still needed a lot of care, so it was difficult to take care of both children properly.
Her older sister would cry because she wanted to play outside, and Seon-a was sensitive to light, so she would cry every time she went outside. Even in the summer, I would carry her on my back and cover her tightly with an adult's top, so she would be drenched in sweat, as if she had just washed her hair.
People in the neighborhood didn't know what was going on and said, "It's been a while since you gave birth, why don't you show your baby's face?" and when I tried to take off her tightly covered clothes, Seon-a would cry without fail.
When her older sister was playing happily with her friends in the playground, Seon-a would instantly leave the playground and head towards the parking lot, and while I went to catch Seon-a, her older sister would look for her mother and not be able to find her until it got dark, so we reported it to the police, and my father, who was at work, came, and after a lot of trouble, we were able to find her.
Things that were trivial to others were like small incidents that made our family's hearts pound every moment, and it was like walking on thin ice as part of our daily life.
After Seon-a was born, I wanted to raise my two daughters, who were born one after the other, beautifully, like twins, by teaching them ballet and taking them to the swimming pool. It was just a fleeting dream. In fact, looking back now, it was too overwhelming to handle an autistic child at 18 months old.
Kang Seon-a, the artist, working on a painting
Seon-a's schedule at 18 months old was really packed.
In the mornings, she received cognitive and language education, and in the afternoons, she played outside with her older sister who came home from kindergarten.
In the evenings, there was Mom's own education at home. It was education through play, such as water play, book and block play, reading aloud, clay play, and playing in a ball pit.
Mom's own education was simple, repetitive play education where the child could see with her eyes, make sounds with her mouth, hear with her ears, and touch with her hands, and her body remembered rather than her head.
Even though her future growth potential was not guaranteed, every day, for 730 days, repeating the schedule, I lived while recalling the hope that I could do it every time I saw a small change.
While seeing small and big improvements, one day when she was 3 or 4 years old, Seon-a read Hangul word cards, correctly guessed the seven colors of the ball pit, and while playing in the living room, she ran to the bathroom by herself to use the toilet. It was a miracle and a thankful event for a mother.
Every day, using food coloring, she played with various colored flour doughs and coloring, and her hand muscles were strengthened by cutting and pasting. After the age of 7, her fingernails and toenails were never cut.
Even now, she is a master at peeling the shells of nuts and chestnuts, and she enjoys eating nuts.
When she was 6 years old, one day, while only coloring on paper like colored paper, she said that she drew Teletubbies, and a preliminary sketch came out.
This series of miraculous changes was actually a steady perceptual movement within Seon-a.
The time I spent struggling with Seon-a for 3 times the amount of time she was 18 months old became the foundation of hope that suddenly came one day.
At school, there was morning worship every Monday as a special activity for the Christian school mission. She attended school 1 hour early and enjoyed singing praise songs and motion songs with the teachers and friends for 3 years.
Through activities in the art class, she participated in artwork exhibitions every year and her artwork was also exhibited at the Seoul Citizens' Hall art product corner.
Through pottery classes and handicraft classes, she also made leather crafts and felt crafts, sold them at a gift shop in a combined format prepared as a school workshop, received barista training at a café prepared as a workshop, and obtained a certificate.
As a volunteer for the parents' barista class, I also took a 3-year assistant class and obtained a barista certificate.
She received repetitive education through external agency visits, experiential learning, and various social adaptation training related to occupations.
Through active participation in school life, such as performance presentations that all students can showcase on stage, inline skating competitions held after continuous repetition training for physical fitness, and track and field competitions held outside the school, there was an overall qualitative improvement in Seon-a's development.
Therefore, Seon-a's artwork is about the people she wants to meet and miss, the stories she wants to share, and the things she wants to do with them.
When she was attending kindergarten, perhaps it was a crush, but she liked the 'Pa' sound of the handbell played by a boy, so she liked eating leeks, and she attached her favorite rabbit character to the handbell 'Pa' sound, and the message of her favorite actions is clearly expressed.
When she exhibited four Christmas wreaths during her second solo exhibition, she said that she wanted to give them as gifts to her friends and acquaintances whom she missed and wanted to see.
In fact, she is very sad because it is difficult to meet her friends from elementary and middle school and acquaintances.
Currently, her hobby and special talent of drawing has led to artwork, and she has become an artist as a profession, which is a happy thing that many people hope for.
Mom's small steps are bearing fruitful results, and her awards are also outstanding.
Inleiding van de kunstenaar
Het tekenen als onderdeel van de behandeling en het onderwijs is vanzelfsprekend een hobby en een creatieve bezigheid geworden. De meeste werken zijn gebaseerd op bestaande en zelfgemaakte personages, waarbij ze aangename dagelijkse ervaringen op een gedetailleerde manier weergeeft met haar eigen ruimtelijk inzicht, observatievermogen en verbeeldingskracht. Ze denkt aan prettige herinneringen, zoals het maken van een ritje in een attractie, een scène uit een prentenboek, schoolfeesten, het kijken naar sportevenementen, familie-evenementen, wandelingen, enz. In de realiteit en fantasie van de kunstenaar worden de bewegingen en gezichtsuitdrukkingen van talloze personages en hoofdpersonen opnieuw gecreëerd.
Opleiding
Afgestudeerd aan de afdeling van de Milar School
Activiteiten
Huidig: Kunstenaar bij Disabled
2023. 12: Zomers wandeling, werk in de collectie van het Museum voor Moderne Kunst
2017 ~ 2021: Deelname aan het culturele en kunstzinnige educatieve programma 'Onze leraar leest voor' voor kinderdagverblijven
2021. 4: Deelname aan het ontwerp van de muurschildering van SK Hynix
2017. 4: Muurschildering in de eetzaal van het Gangnam Disability Welfare Center
2016. 2: Illustratie voor het boek met O. Henry's verhaal, Illustratie voor het boek met puzzels voor de geest
Kang Seon-a - Zonnebloemherinnering - Vraag naar de aanschaf van het kunstwerk via 1004@dpi1004.com
Reacties0